Similar to the clinic Wednesday, our number of positive HIV test results seemed to slip below the average rate we'd seen, down to maybe ~15%. Before the clinic fired up, we were discussing on the bus how easy it is to forget what these tests actually represent; after collectively performing hundreds of tests over the last month, it's easy to distance yourself from the weight these results have for our patients (keep in mind that we don't deliver the results to the patients ourselves, and in general, often lose track of which patients we've tested were positive or negative simply because of the sheer number we may see in the hours we spend in triage). At the same time, each time a child (or family) step up to be tested, your heart picks up, and a lump builds in your throat, and I will admit to a feeling of uneasiness, even fear with each finger prick. Unlike the many adult tests, I never forget the face that matches the number on these tests, and find myself continually peeking into collection box, hoping I see only a single line (indicating a negative result). A negative result provides an instant rush of relief, but the occasional double line can be crushing (as mentioned in my last entry, a single pediatric positive can wipe out any positive feeling about an otherwise "good", low day). Today's clinic had a few different kids test positive, and while we are glad to be aware of their status so that treatment and monitoring can begin, the potential reality of their future can be disheartening.
Perhaps further frustrating are parents who pull their children through the clinic, while declining to have them tested, even if they may be at risk. My heart sank today when I took a sample from a young mother with a baby wrapped onto her back not more than a few months old. Through a translator, the mother ("make", pronounced mah-gay) made it clear she did not want her child to be tested (not the first time this has happened; many Swazis are afraid of a positive result and what it might mean, and some are willing to live with this ignorance rather than solidify their status). After she walked away, I checked her result; positive. Assuming she was positive during her pregnancy (not really a stretch), there was about a 25% chance the child was also positive. I did not see the pair after they left our room, and it's possible that Harry or the HIV counselors could convince her to test the child soon, but the knowledge that this child was very possibly infected but not being monitored was, at best, extremely frustrating, and at worst, angering.
While on this topic, I should point out one of the brightest spots in the Swazi health care system, the "Prevention of mother to child transmission" (PMTCT) program. In Swaziland, anti-retrovirals (ARVs) are provided to all Swazis (money provided by The Global Fund) when their CD4 count drops below 350 (highlighting how unfortunate it was when this testing ability was temporarily lost when we first arrived!). An exception is given to expecting mothers. Regardless of CD4 count, they are given access to ARVs, until they complete breastfeeding. It should be noted that this used to be a controversial program; frightening, but not very long ago (within several years even) it was widely believed that it was better to allow HIV positive mothers to carry children without taking ARVs, as it was better that the child have HIV and suffer the fate of the mother, rather than continuing the proliferation of AIDS orphans in the country ("shocking" doesn't even begin to cover the feelings this stirs up, but it does highlight the challenges that some widely held, much-misguided attitudes have thrown in the path of progress). That attitude has (fortunately) waned, and this program has been quite successful in preventing the spread of HIV from mother to child.
The clinic ended on a particularly positive note; as we prepped to roll back to Manzini, a film crew working in partnership with TLC today stopped to interview one of our patients. I caught part of the interview, and Echo filled in the rest of the details. The patient had once been a professional soccer player, but since contracting HIV, his once strong legs had atrophied, and he had lost his wife and son to the disease. For years, he saw a traditional healer, who told him his illness was due to a curse from those jealous of his athletic success. Once he was diagnosed with HIV, he started on ARVs, and reported feeling much healthier since, but was concerned about his remaining sons status. Pumi, one of the TLC staffers, performed the test on the spot on the boy who couldn't have been older than 7 or 8... negative :).
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